The 2019 Alzheimer’s Association’s Annual Report Breakdown
2019 was a big year for the Alzheimer’s Association. With record-breaking fundraising, research grants, increases in awareness and the creation of effective legislation, this past year was a strong step forward in the battle against Alzheimer’s Disease. I have summarized the association's 42 page long annual report to provide a clear summary on the Association’s efforts in 2019.
In 2019, the Alzheimer’s Association brought in $393 million in contributions. The use of those contributions is broken down in the graph below.
Graph Taken from The Alzheimer’s Association’s
2019 Annual Report
New Scientific Investigations
In 2019, the Alzheimer’s Association granted over $42 million to 162 new research studies. The studies were chosen through a peer -review process made up of 519 applicants. Some of these studies are highlighted below.
The Longitudinal Early-Onset Alzheimer’s Disease Study (LEADS)
LEADS studies early-onset Alzheimer’s disease. The study was originally started by the National Institute on Aging. The study observes the differences and similarities between late-onset and early-onset Alzheimer’s disease and in 2019 the Indiana Alzheimer’s Association donated $1 million dollars to the study. The observational study follows 500 participants with cognitive impairment and 100 cognitively healthy patients to gather data for future use in studies. For more information on LEADS, click here.
The Association awarded more than $800,000 to SPRINT MIND 2.0. SPRINT MIND is a groundbreaking study that has found that lowering blood pressure may significantly reduce the chances of cognitive impairment. The $800,000 given to the study will help further their research into the impact on blood pressure on reducing the risk of Alzheimer’s. For more information on SPRINT MIND, click here.
The Association’s TrialMatch tool has increased its database to over 415 Alzheimer’s and Dementia trials. The goal of TrialMatch is to provide easy to understand information on clinical trials and help support recruitment efforts for these trials. Learn more here.
2019 was a big year for raising awareness. The Alzheimer’s Association made 12.5 billion media impressions, increased Association awareness by 15%, and saw a 26% increase in the number of physician referrals. The Alzheimer’s Association also launched new campaign efforts for Alzheimer’s awareness that you can read about below.
The mantra of the United campaign is “red + blue = purple” and its aim is to bridge the political divide to help combat Alzheimer’s. The campaign was launched during the first 2020 Democratic presidential debate and you can see their ad here.
Launched in conjunction with the AdCouncil, Our Stories shares “Real Profiles in love, strength, and living with Alzheimer’s. Check out Cynthia’s story here. Our Stories also provides a conversation guide for discussing seeing a health professional for a possible Alzheimer’s diagnosis.
In 2019, the Association increased its action on Federal Alzheimer’s priorities by 134% resulting in the creation of new Alzheimer’s action legislation.
BOLD stands for “Building our Largest Dementia Infrastructure for Alzheimer’s Act.” This bipartisan bill was introduced by 4 democrats and 4 republicans. The bill would create a public health infrastructure focused on addressing Alzheimer’s and other forms of Dementia. BOLD would provide funding to state and local health departments to provide information on cognitive health, detection, and diagnosis as well as aid in collection data of cognitive decline. By the end of 2019, the bill was co-sponsored by more than half of Congress, 256 Representatives, and 58 Senators. Read more about it here.
Younger-Alzheimer’s Disease Act
Another bipartisan effort, the Younger-Alzheimer’s Disease Act, would allow the 200,000 Americans under the age of 60 with early-onset Alzheimer’s to access support programs from the Older Americans Act (OAA). The OAA was passed in 1965 and provides in-home help, legal services, transportation, caregiver support and more. Under the current law, only those over the age of 60 are eligible to receive access to these services, which leaves many Americans in need of specialized care little option for help. By the end of 2019, the bill had 119 sponsors in the House and 25 sponsors in the Senate. Read more about it here.
Improving HOPE for Alzheimer’s Act
HOPE aims to increase awareness of care planning services for individuals with cognitive decline by requiring Medicaid and Medicare services to increase education and outreach about their current care planning services. It also requires a report to Congress on the outreach and utilization of these services. Read more about HOPE here.
If you would like to help the Alzheimer’s Association continue their fight against Alzheimer’s Disease in 2020, click here for information on donating to the Association and let’s make this year the best yet in the fight against Alzheimer’s.
You can read the Alzheimer’s Association’s 2019 report in its entirety here.